Steven B | EWOC

Introduction to Empowered World Online Community

  1. Collaborative RESearch Team to study Bipolar Disor
    Introduction to Empowered World Online Community
    Transcript Header:
    Steven B | EWOC
    Transcript Body:
    • 1. CREST.BD Empowered Worldwide Online Community (EWOC)
    • 2. 1. Origins of the Idea 2. The Current Idea 3. Major Goals 4. Major Issues 5. Initial Requirements 6. Next Steps 7. Potential Funding Sources Overview
    • 3. EWOC origins of the idea • arose during last year’s network meeting • began as an idea to do a large-scale international internet survey using data visualization and social media as recruitment and networking tools • grew into a larger idea that involves the creation and support of an online community • with philosophies and goals that emulate those of CREST.BD
    • 4. EWOC the current idea • arose during last year’s network meeting • began as an idea to do a large-scale international internet survey using data visualization and social media as recruitment and networking tools • grew into a larger ivdea that involves the creation and support of an online community • with philosophies and goals that emulate those of CREST.BD • in short: a site/tool similar to patientslikeme.com, but for BD and with a different set of philosophies and goals
    • 5. EWOC major goals • a living library • tackle isolation and stigma • dissemination of treatments and interventions in hard-to-access, marginalized, and/or rural communities • create and build community • a major international research platform • health and QoL improvements through research engagement and dissemination of cutting-edge psychosocial treatments and interventions • users as experts who are integrally involved in research • research and knowledge exchange
    • 6. EWOC initial requirements • built by professional designers and programmers • launched all at once (rather than iteratively) • ‘responsive’ web design (with an associated app?) • integrated social media capabilities • private chat system • social network and other visualizations
    • 7. EWOC major issues • multiple language support • defining BD for the potential user (to avoid excluding those who don’t have a formal diagnosis) • a good research question for launch? • user privacy considerations
    • 8. EWOC next steps • identify interested CREST network members • identify current resources and barriers to support grant development within the context of the 2014-15 workplan • further specify the philosophies of the site/tool • flush out the details for a grant application • identify suitable funders for such a grant application (or applications) • compose the grant application(s)
    • 9. EWOC potential funders • Canadian Institutes for Health Research (CIHR) Foundation funding scheme • CIHR e-Health funding? • Pharma? • UBC Peter Wall Foundation • Canadian International Development Research Centre (IDRC) • International Funding Opportunities?
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